To browse Academia. Skip to main content. Log In Sign Up. Curriculum Vitae. Drew Lima. They are in need of our help so please open up your heart's to this wonderful family and help them where you can.
From all of us here we send you our love and blessings, you have our full support and we dedicate this issue for all that you have done and for all those that you have helped now it's time for someone to help you I met Shawn thru a friend on facebook, as soon as I read his story My heart ached for him and I immediately emailed him letting him know how strong I thought he was. And his Boy Tylar with the beautiful smile of an angel.
Its a genetic disease where his muscles deteriorate. Without stemcell research there will never be a cure. Shawn has been with his son all along. At the age of 3 he began to what is called gatewalk or kind of wobble.
By the time he was 7 he was wheelchair bound. His family was told by the age of 12 he would die, he was very severe. Shawn chose to have full custody and worked as long as he could until Tylar condition worsened at the age of Tylar could no longer use his wheelchair and became bed ridden. Cps was called on Shawn for his sons extremely thin appearance which was a result of his condition.
Despite the pressure from insurance agencies to put him in a home, his father wishes only to have him at home in the company of family to live out what is left of his life, instead of in a home in the company of nurses and strangers. Tylar and Shawn are 2 of the most amazing people you will ever meet, they have been through so much but their only desire is to help others so they do not have to go through what all they had to endure and to spread the word out what this disease does and help advocate for a cure.
